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RARE Conversation - Take 3: Research in rare disease: specificities and needs
The third episode of Alexion’s Rare Conversations event series will be a forum to discuss specificities and needs of research in rare diseases. Research and development of new treatments in rare and ultra-rare diseases faces its own challenges. This is due to missing knowledge of the disease, small patient population, difficulties to conduct clinical trials and needs for high investments.

The event in cooperation with BPI is aimed to discuss how the revision of the OMP and Paediatric Regulations could trigger new research for the benefit of rare disease patients. After 20 years since its adoption, it is worthwhile to reflect on the future of the OMP regulation, while ensuring predictable framework conditions to foster continued scientific advance in areas of unmet needs.
Webinar is over, you cannot register now. If you have any questions, please contact Webinar host: Yezza Mehira.